Through discovery, innovation and collaboration, researchers at the Aflac Cancer and Blood Disorders Center of Children's Healthcare of Atlanta are searching for ways to improve the outcomes and quality of life for survivors of childhood cancer.
Current grant-funded research underway at the Aflac Cancer Center Survivorship Program includes:
- Education and health promotion for survivors of childhood cancer
- Agency for Health Care Research and Quality: this project built SurvivorLink, an IT system designed to support pediatric cancer survivor care throughout Georgia and provide educational materials to improve awareness of survivorship issues and best practices in survivor care.
- Lance Armstrong Foundation: this project aims to increase awareness and knowledge in Georgia's healthcare professionals of the need for specialized, life-long follow-up care of childhood cancer survivors through two educational venues.
- Dudley Moore Nursing and Allied Health Research Fund: this grant will evaluate the education given to new childhood cancer survivors by identifying areas where there is a lack of knowledge and recognize topics that need further education and emphasis among cancer survivors.
- Health status and quality of life among adolescent and young adult cancer survivors
- Emory Seed Grant: this grant established the Childhood, Adolescent and Young Adult Cancer Survivor (CAYACS) study that developed an ethically diverse, prospective cohort of childhood, adolescent and young adult cancer survivors.
- Lance Armstong Foundation Community Participatory Research Grant: this grant established a community partnership between Children's Healthcare of Atlanta, CSP and several community groups to identify and contact more than 1,300 adolescent and young adult cancer survivors, including those lost to long-term follow-up.
- Specific issues in cancer survivors
- Childhood Cancer Survivor Study (CCSS) - NCI funded: phase I study
- Lance Armstrong Foundation Grant: testicular and sexual dysfunction in adult survivors of childhood cancer
- Health related outcomes
- Research methodology and statistical applications around clinical outcomes research
- Investigation of late effects of therapy of childhood and adolescent cancer
- Testicular and sexual function
- Non-melanoma skin cancer
- Genetics of skin cancer
- GH and second CNS neoplasms
- Low BMI
- Improve screening and treatment for late effects
- Better understand the endocrine and non-endocrine late effects experienced by brain tumor patients
- Communication—health risk
- Study effective communication and intervention strategies to increase quality of life and reduce morbidity and mortality in childhood and adolescent cancer survivors
- Health services research—barriers