The Emory/Sibley Adult Congenital Cardiac Program is one of the largest programs in the U.S.—and the only one in Georgia—specializing in the treatment of adults with congenital heart disease (CHD). The team, led by Brian Kogon, M.D. and Wendy Book, M.D., performs more than 100 operations on adult congenital patients each year and sees more than 2,000 patients in our outpatient clinic.
The program helps to ensure that children with congenital heart disease are receiving appropriate lifelong care. The challenge is that kids can get lost transitioning to adult programs, and may not receive care from people who are trained to monitor their condition, or may not follow up with anyone at all.
At Children's, teens with moderate to complex congenital heart disease work with their doctors and nurses to ensure they are prepared to transition to adult care. They are given a booklet about growing up with CHD, and pediatric cardiologists help them fill out an "owner's manual" about their condition. It outlines expectations for many life decisions teens will face, like guidelines for insurance coverage, ability to start a family and physicians who should be part of their adult care team.
According to Michael McConnell, M.D., a pediatric cardiologist with the Adult Congenital Cardiac Program, "Children's is not just about putting Band-Aids on children, but helping them as they mature with chronic illnesses."
Learn more about this specialized program