Family Support Groups

Helping Families Deal with Epilepsy

When a child is diagnosed with an illness, it affects every member of his family. That’s why the Children’s Healthcare of Atlanta Epilepsy Center offers support groups for both parents and children who are dealing with epilepsy.

Our first-ever Children's Epilepsy Camp was held during the summer of 2010 at Camp Twin Lakes-Will-A-Way in Winder, Ga. Learn more

Parent Support Group

The group provides participants with information, education, resource sharing opportunities, emotional support and a chance to talk with other parents. This group is facilitated by Kathy Braden, Licensed Clinical Social Worker, and Jennifer Ganote, Nurse Clinical Coordinator, both from the Children’s Epilepsy Center. Braden has experience working with families who have a loved one diagnosed with a chronic, disabling or life-threatening medical condition. Ganote has an extensive background in neurosciences and epilepsy and is available to assist in understanding the medical aspects of care.

Children's Support Groups

The children’s groups are for ages 7 (mature 1st graders) through teenagers who are able to attend a peer discussion group independent of parents for an hour and a half.

The Children’s seizure support group is geared toward children learning to cope with their diagnosis in a social support format. The group offers a safe place for children to be open about issues, learn more about their diagnosis, discuss real life experiences, and most importantly, have fun and meet others. Siblings are also invited to attend the meeting.

Occasionally the two support groups will be divided based on age demographics to address specific issues for that age group. The Children’s support groups are facilitated by Neuropsychology Department residents and psychologists, and by Kate Bellamy, Child Life Specialist for our neurology inpatient unit. All Children’s support group facilitators are experienced in working with special needs families and children with chronic medical or neurological issues.

 

     
 
SupportGroupMeetings

    Join us the third Thursday of each month (with a summer break June & July) at 6:00 pm at Children's at Scottish Rite. For driving directions, visit the Children's at Scottish Rite web page or call 404-785-3400. The format of the support group is open for parents and caregivers to share their experiences. Guest speakers will be scheduled on occasion to present educational topics related to seizures.

     

 
     

There are three separate support group meetings on each scheduled night:

  • A parent education group for parents and caregivers of children with seizures to get to know each other and lend support to one another. 
  • A children’s support group for children with seizures. This is time to meet with others who can relate to personal, shared experiences. Siblings are invited to meet with others who also have and support a family member diagnosed with epilepsy.
  • A teen break out group is offered if enough teens are in attendance that day of group.

Please call to RSVP if you plan on attending or to get more information about the groups. To RSVP, call 404-785-3034 with your name, contact information, how many will be attending, and the names/ages of the kids planning on coming with you. Please RSVP at least 24 hours in advance.