Resources

Having a child with a craniofacial abnormality can be an overwhelming, life-changing event for the entire family.  To help answer questions you may have about your child’s condition, the Children’s Healthcare of Atlanta Center for Craniofacial Disorders has provided the following resources:

Support Organizations

  • Forward Face
    The mission of Forward Face is to help children and their families find immediate support to manage the medical and social effects of facial differences.
  • FACES: The National Craniofacial Association
    For 40 years, FACES: The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
  • National Foundation for Facial Reconstruction (NFFR)
    Established in 1951, the National Foundation for Facial Reconstruction addresses the plight of children with a facial disfigurement by supporting state-of-the-art treatment, innovative research, psychosocial support and medical training that inspires a new generation of pediatric doctors.
  • cleftAdvocate
    An organization dedicated to providing education and inspiration to families affected by cleft lip and palate. 
  • Ameriface (formerly AboutFace USA)
    The mission of AmeriFace is to provide information and emotional support to individuals with facial differences and their families and increase public understanding through awareness programs and education.
  • American Cleft Palate-Craniofacial Association (ACPA)
    The ACPA is an international non-profit medical society of health care professionals who treat and/or perform research on birth defects of the head and face.
  • My Tort Support
    An online parent support group for families suffering from torticollis.