Sutton Burnett

Sutton

When Sutton was just 5 days old, her parents, Brittany and Jeff, received a call from their pediatrician: their daughter had cystic fibrosis (CF). The genetic disorder can cause life-threatening lung infections, obstruct the pancreas, and stop natural enzymes from helping the body break down and absorb food. 

Just an hour after the diagnosis, the team from the Children’s Cystic Fibrosis Center called to help the family deal with the overwhelming news that their precious daughter would face a lifetime of health challenges. The Burnetts traveled to the CF clinic the same day. During their visit, Brittany and Jeff met with the entire team—the physician, nutritionist, therapist and nurses—who would serve as their support system. Their physician assured Brittany and Jeff that the team at Children’s would be there for them no matter what. 

Along with the pressures of having a newborn, Brittany and Jeff had to learn how to keep their daughter growing stronger every day. They make sure Sutton, who just celebrated her 1st birthday, stays healthy by relying on her many medications, breathing treatments and a respiratory therapy vest. 

As Sutton gets older, she will have to wear the vest for 30 minutes twice a day to help control her disease, eventually learning to manage the disease on her own. Until then, her parents will work to keep her healthy day in and day out. While there is no cure for CF, the Burnetts remain hopeful, and Children’s will be with them every step of the way.

Video: Meet Sutton

Meet SuttonView

At just 5 days old, Sutton's parents, Brittany and Jeff, received the call from their pediatrician: their daughter had cystic fibrosis (CF). While there is no cure for CF, the Burnetts remain hopeful, and Children's will be with them every step of the way.

 
   
 
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