In the News

Pediatric Heart Patient Stories

Once diagnosed, children and their families have an entire team at their side to provide family-centered care and advanced treatment options. Meet some heart patients who have received care at the Children's Sibley Heart Center. Their stories reflect our commitment to patient care and family support.

  • Meet Audrey

    Audrey was born with long QT syndrome, a disorder of the electrical system of the heart. With proper medical management of her disease and a pacemaker Audrey has a good prognosis.

  • Meet Brynslet When Brynslet's mom noticed her energetic 2-year-old wasn't acting like herself, she wasted no time and brought her to the doctor. Brysnlett was transferred to the Sibley Heart Center at Egleston hospital where she eventually received a new heart and became the program's 300th heart transplant recipient.

  • Meet Greer

    Greer was diagnosed with supraventricular tachycardia (SVT), a mircoscopic electrical abnormality in her heart caused her heart to beat rapidly when she exercised. Doctors used cryoblation to target the precise abnormality in the heart and destroyed it with subzero freezing.

  • Meet Harris

    The Dalton St. Patrick's Two-Miler is short by road race standards but for some it was just the last 2 miles of an epic journey.

  • Meet Olivia

    Olivia Harvey was diagnosed with a congenital heart defect (CHD) and multiple other heart defects at birth. An echocardiogram revealed further complications with her heart and, at 6 months old, Olivia underwent her first open heart surgery at Children’s.  

  • Meet Phillip

    Phillip went home only days after undergoing the new Melody Transcatheter Pulmonary Valve procedure.

  • Meet Rylen

    Rylen was diagnosed with dilated cardiomyopathy, a condition in which the heart becomes weakened and enlarged and cannot pump blood efficiently. He needed a new heart.

  • Meet Spencer

    Diagnosed at 21 months with pulmonary hypertension, Spencer has to be careful not to overexert himself, and he must avoid activities such as contact sports. With help from Children’s, Spencer has made incredible strides.

  • Meet Yasir

    When he was five months old, Yasir was admitted to Children’s suffering from severe heart failure. Yasir needed a new heart, but his doctors worried that he might not be strong enough the wait for a donor heart to become available. In order to buy him a little more time, he was given a Berlin Heart as a bridge for his heart before transplant.