The Children's Healthcare of Atlanta Cystic Fibrosis (CF) Program assists CF patients and their families in meeting essential medical and educational goals in managing healthcare needs.
Living with CF
Having a child diagnosed with cystic fibrosis (CF) can be overwhelming. We invite you to view these videos to learn more about life with this condition and how it affects the entire family.
CF is a life-shortening disease caused by abnormalities in the movement of salt and water across cell membranes in the body. As a result, the flow of certain secretions is obstructed, particularly in the lungs and pancreas. As a result, people with CF develop:
- Persistent infections of the bronchial tubes that may cause long-term lung damage.
- Digestive abnormalities that prevent the body from breaking down and absorbing food, leading to inadequate growth and nutrition.
CF in Georgia
Approximately 30 babies are born in Georgia each year with the disease. Until recently, most children with CF were not diagnosed until they showed symptoms of the disease, which may sometimes take years.
In January 2007, Georgia began screening all newborns for CF, so infants are now typically diagnosed by about 1 month of age, before showing obvious symptoms.
Children's multidisciplinary approach to patient care follows the guidelines suggested by the national Cystic Fibrosis Foundation. The comprehensive and coordinated care teams at our CF Centers and inpatient units at Children's at Egleston and Children's at Scottish Rite consists of members from the following disciplines:
- Child life
- Physical therapy
- Respiratory therapy
- Social work